Owen Robert Johnson

Owen Robert Johnson was born January 3, 2008 in Logan, Utah. He was born with low muscle tone. He never had a true diagnosis but was thought to have Spinal Muscular Atrophy. He returned quietly and quickly to his Heavenly Father July 10, 2015.

Owen loved music, lights, books, cartoons, being held, coloring and playing on the iPad. His latest loves were FaceTime for preschool, story hour, primary and Kindergarten. He recently finished his Kindergarten year and got the starburst award for being the ‘star’ student.

He was a true light and special spirit in our home. He loved primary music and talking about Jesus and Heavenly Father. He was surrounded by angels often and would have his conversations with them. He would give a look of disappointment when he was interrupted.

He blessed our lives in too many ways to count and changed our lives forever. Owen had a way of touching anyone who came in contact with him. He will be missed by many!

Owen is survived by his parents Lenn and Gayle (Tinker) Johnson, his brother Bentley, sister Abby all of Cokeville. His grandparents Robert and LaRue Johnson, of Randolph, Utah, Michael and Jana Walker of Vernal, Utah and Bryan and Jodi Tinker of Manila, Utah. He is also survived by many loving aunts, uncles and cousins.

He is proceeded in death by his little brother Landry, maternal grandparents Gale and Linda Sue Tinker, great grandparents and other loved ones.

We would like to give a special thank you to ‘Owen’s team’! We could not have made this journey without you. Thank you to the doctors, nurses, respiratory therapists, social workers and therapists that quickly became family. To Sam Janney and crew for ultimately getting Owen home! To Best Home Health for taking a risk and accepting Owen. To Firmco for taking care of all of his equipment needs. To the Kindergarten class, teachers, therapists and staff and Cokeville Elementary. To the Cokeville Library staff and the many primary teachers he had. Of course to our dear family and friends who also made this journey possible. Thank you for your love and support and mainly for believing in us.

Merry Christmas 2014

Merry Christmas from the Johnson's

A FEW Of My Favorite Things.....

I LOVE Christmas time! I saw these cute ornaments last year and loved them but as with most of my ideas it stayed in my head. This year I showed the idea to a friend then told her I found where you could get the wood blocks. Again, just thinking "oh that's a good idea", but instead she said she was ordering them. We ordered them and actually got them done! I am so grateful because I love them! I did more than this but my babies are some of the favorites. 

 I took this picture so he could be part of the school Christmas play. I love it!
He loved having the Santa hat on.

 I love our nativity! It was always a favorite decoration when my Mom put it up each year
and it continues to be a favorite.

 I love this boys smile...enough said :)

 Owen's Christmas tree.

 I love the Christmas tree lights when everything else is dark. There is such a special feeling of peace.

 I love our Christmas Eve acting out of the nativity.

 I love that this girl loves Owen!
She stopped to visit with him before she left for Jerusalam for a semester of school.

I love our Christmas lights that Lenn puts up, only with a little help from the rest of us!
This year he bought this angel, not a good picture, but I love it! It is even blue!

And of course the memories!! Aww the memories....I am not sure where Rhet was, 

maybe hiding from all the dolls;)

Feeling blessed and surrounded by miracles

The last little while has been a little tricky with Owen. He has been really good and then all the sudden he's not. I am pretty sure he likes to make sure we are paying attention!

About 3 weeks ago I noticed a pressure sore on his tailbone area. My heart sank because those are not good anywhere, but right there I knew would be tricky. I did want I had been told to do previously and then made a little donut for his bottom.

His doctor told me to keep a close eye on it and send pictures to keep them posted. I use duoderm, and since he isn't immersed in water for a bath it stays on for awhile. I thought I would take pictures each time the duoderm came off to compare any progress or worsening of the sore.

The second time it came off I was getting ready to send more pictures when I realized something about the sore wasn't right. I felt it and it felt like a scab. I softly scraped at it and it came off!!
The sore was gone and completely healed!  I could not believe it! I still have a hard time believing it went away only after about a week and a half. I knew right then that I had just witnessed a miracle!

I was giddy the entire day! I couldn't help but feel my Heavenly Fathers' love for Owen and our whole family. I know that Owen is watched over day and night very closely by loving angel hands sent from above.

He shaved!!

The last few weeks have been very humbling to me! Lenn's idea to see if we could raise money for SMA research, started an outpouring of support from many of you. Not only did we meet our goal but went above and beyond. Our grand total is $1325!! That is amazing! I really wondered if we would even reach $500.

Thank you to all who donated to support our fundraiser to not only shave Lenn's beard, but to aid in finding a cure for SMA. We got all the money in the mail this week and I am really excited and hopeful for what it might do.

Again THANK YOU, to all of you who donated!! We would like to give you a little something as a thank you, so if you donated without letting us know please message one of us, text or get a hold of us somehow.